SNDYS would love to wish all the beautiful Mums out there a very Happy Mother’s Day. We would also like to acknowledge this can be one of the most difficult days of the year for some.

For the month of May, SNDYS has chosen to donate $1 from every sale to Epilepsy Action Australia and for today we are also doubling our donation in honour Of Erin & Luella. @little.lulu.love

We came across this superhero mum via social media and we are so grateful that we did. After hearing her story and the battle she and her family are constantly dealing with every day is just heartbreaking. We knew the second we heard all about her beautiful little girl we had to do something to help in any way we could. 

Erin is a mum of two from Sydney. She has two beautiful children, her daughter Luella and her son Tom. At just 11 weeks old Luella was diagnosed with infantile spams/west syndrome, which has now progressed to Lennox Gastro Syndrome as she has become a toddler. Along with another form of epilepsy, it is one of the top 3 worst forms of epilepsy you can have.  

Epilepsy is just an umbrella term for an array of different seizure types. This type of seizure Luella has is a rare, disabling and incurable seizure disorder that causes up to 250+ spasms a day. Her prognosis is one where she will likely never live independently, feed or use a toilet by herself and it is very unlikely Erin will never hear her beautiful girl say “mama” or “I love you”  Even on days when she feels broken and has been through hell and back, Erin is still the most amazing, loving mum to both of her children. Just like the rest of us she is just trying to get through the day however she has bigger mountains to climb.  Her constant fighting for lulu to have the best possible life she could, as well as trying to bring awareness to this cause, on top of everyday life is so inspiring. After learning more about Erin’s story and researching epilepsy ourselves, we knew this would be our charity for the month of May. 

Epilepsy Action Australia do amazing work and have been the leading national epilepsy charity for the past 71 years. They not only help children like Lulu, they also provide a support network for the many families. For Erin and her family, they have provided amazing services such as providing education & training for lulu’s educators at daycare so that they understand how to appropriately care for her and other children present during a seizure. 

They have affiliations with numerous companies who provide safety seizures equipment for home, like seizure mats, alarms, watches & anti suffocation pillows etc. The phenomenal emotional support that Epilepsy Action Australia has given not just Erin and her husband, but families all over Australia along with their incredible expertise, has supported Erin’s family and families alike get through some of their darkest days.

Epilepsy is a heavily undernourished condition within Australia, so ensuring we continue to support and raise much needed funds for the services of Epilepsy Action Australia are imperative for any person struggling with this condition. 

To follow along on Erin & lulus journey please see insta handle below  

Erin will be running the Sydney Half Marathon on Sunday 21st May 2023. She has a goal of raising $100,000 for Epilepsy Action Australia.

If you would like to donate please see the link below